The "Daddy Log"

While our boys were alive, Jon kept a journal that we affectionately called the "Daddy Log". Jon would sit at our sons' bedsides and write the events of the day. He recorded all the things we never wanted to forget as well as medical details. Although some memories are still as fresh as though they happened just yesterday, others fade with time. We were blessed with amazing hospital staff who cared for our boys.  We didn't always agree with the treatment choices that were made, but we advocated for our boys' care. Jon's entries reflect the roller coaster that we experienced as we became parents for the first time. We will post exerpts from the Daddy Log as we share our story...